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Mom
and Dad, Julie and Bryan, are just a normal couple. We've
come a long way! HA! My mother-in-law gave me a magnet that
says "Around here, normal is just a setting on the dishwasher."
I love it!
We aren't famous, so we don't have a tremendous
voice; however, we have had around 15,000 hits on our site
since 2006. Edward E. Hale said, "I am only one, but
I am one. I can not do everything, but I can do something.
And I will not let what I can not do interfere with what I
can do." I used to keep this saying on my board to inspire
my students. Now it inspires me.
Before Jude, I went wherever I wanted to go
and did whatever I wanted to do with Jett. When I was pregnant
with Jude, I remember telling one of my friends, "My
life is so perfect. Nobody's life is this perfect, and I just
wonder when it is going to rain on my parade." Call it
mother's intuition, but I knew that God's plan for Jude was
very different. His birth announcement stated, "You saw
me before I was born and scheduled each day of my life before
I began to breathe. Every day was recorded in Your Book."
Psalm 139:16. In fact, his name, Jude, is from the Book of
Jude, which shares a message to "contend for the faith."
Bryan is undoubtedly a people person. He is
easy-going and funny. He gets involved in whatever I ask him
to do, but his ultimate goal is being a loyal employee. We
really appreciate his company's great people and benefits.
After he gets off work, we take the kids to swimming classes,
go on walks... we all four love family time. Since we found
out what Jude has, our family focus has improved! We realize
that life is very special and shouldn't ever be taken for
granted. Bryan is the best daddy and husband anyone could
ever want. If it all ended tomorrow, I could look back and
say that it couldn't have been better.
As
for me, I've always liked to teach and volunteer. I guess
Jude and his condition are a blessing for me. My eyes were
opened as a teen during a mission trip to Mexico. Almost 15
years later, I've been through multiple states, schools, organizations,
and projects. I have had many humbling life experiences, but
once again my eyes were opened when we had Jude. I realized
that I could do a whole lot more than what I was doing before.
Life changes. Hearts change. Minds change. Needs change. I
quit my part-time job as an adjunct professor, and now I focus
on the needs of children through the United
Mitochondrial Disease Foundation, Friends
of Children's Hospital, and the Mississippi
Foster Care System. I would love for you to read one of
my articles online.
Before we were married, we both knew we wanted
to adopt. One day I read in the newspaper about a couple where
one wanted to adopt and the other didn't. The columnist had
adopted her own child and responded by saying that as soon
as the baby was in her arms, it didn't matter to her one bit
how it got there. Here's the best part. She said that for
every woman and man out there who desperately want children,
there are children out there who desperately want parents.
WOW! I wish I could remember who wrote it.
We are not going to have anymore children of
our own. Having Jude confirmed our desire to adopt, and in
that regard, he helped another child in need. Last December
we welcomed a perfectly healthy, beautiful foster baby into
our family. He will be with us for at least 1 year.
I think too often people get caught up with
questions like "Why do I have financial problems?"
or "Why did I lose my job? or "Why did my parents
divorce?" or "Why is my child like this?" And
on the bad days, we wonder why Jude has gone through such
pain. However, if you live in the United States of America,
no matter what your circumstance, you probably have more resources,
more opportunity, and more treatments than most of the world.
Because this is not a perfect world, there are many big, very
sad problems out there. There are also many factors that determine
outcomes in life. But I know this: Even if you don't believe
in God, you should still support the greater good of humanity.
Doing so makes the world a better place to live. I believe
that God gave us Jude for a greater good. Our little package
comes with a daily dose of humility and a great appreciation
for life. We have watched our Jude suffer, and we have cried.
But for as long as he is here, his life will be better than
so many needy children. And instead of focusing on our lemons,
we are trying desperately to make lemonade.
Someone blessed me by sending this poem in 2006,
about the time I needed it the most. I was so busy focusing
on my sick child that I really never realized how his experience
was molding me and changing me. Just read it
and be blessed.
"The Special Mother"
by Erma Bombeck
Most women become mothers by accident, some
by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped
children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care
and deliberation.
As he observes, he instructs his angels to take notes in a
giant ledger.
"Armstrong, Beth, son. Patron Saint, Matthew."
"Forrest, Marjorie, daughter. Patron Saint, Celia."
"Rutledge, Carrie, twins. Patron Saint...give her Gerard.
He's used to profanity."
Finally he passes a name to an angel and smiles. "Give her
a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a
mother who knows no laughter?
That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown
in a sea of self-pity and despair.
Once the shock and resentment wear off she'll handle it."
"I watched her today.
She has that sense of self and independence so rare and so
necessary in a mother.
You see, the child I'm going to give her has a world of its
own.
She has to make it live in her world, and that's not going
to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect.
She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally,
she will never survive.
Yes, here is a woman whom I will bless with a child less than
perfect.
She doesn't know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be
witness to a miracle and know it.
I will permit her to see clearly the things I see--ignorance,
cruelty,
prejudice--and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my
side."
"And what about her Patron Saint?" asks the angel, his pen
poised in the air.
God smiles. "A mirror will suffice."
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