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Are
you BRAVE enough to be "MITO-IZED"
this Halloween? Check out the costumes!
To the right, Trusty the Mississippi
Braves mascot, displays a mitochondrion signed by the
team!
Think mitochondria don't affect you and your
family?
From type 2 diabetes, Parkinson's, atherosclerotic heart
disease, stroke, Alzheimer's disease, and all the way to cancer,
research shows that mitochondria are involved. Time for a
reality check--an intelligent reality check. Click
here to find out if you are smarter than a 5 year old.
UMDF funded researchers are constantly finding
compelling data that we hope will eventually advance treatments
for numerous age related diseases – which has far-reaching
implications for us all. This disease that most have never
heard of might one day explain everything they fear. How
are mitochondria related to common diseases? Read
for yourself.
Currently, donations fund all research through
UMDF. They receive no federal funding for the research projects
that lead the way in the fight against mito. Learn how
you can help.
Life with mito:
In June 2006 I created our first website--www.savejude.com.
Not only did that experience help me (mom) cope, it also helped
me help! Because there is so little research, living with
mito is like constantly living with the unknown. Sharing our
story meant sharing the knowledge that we had learned the
hard way. If your child has recently been diagnosed, you may
feel that diagnosis was delivered with a death sentence. As
you can see above in the smallest of smiles, that is not always
the case. We hope you find this website inspirational and
informative.
Always
remember, parents know their child best. You are going to
have burning questions and feelings about your child's well-being
that no one else will understand. Just like you would advocate
for your child's educational success, you must take 100% responsibility
for improving your child's health. A teacher's job is to instruct
your child in the classroom, but it's your job to do homework
with your child and provide supplemental activities. In a
medical sense, it's much the same. You must research the latest
information, find the most reliable supplements, and make
sure that your child is on the charts developmentally and
physically. If not, you must question services and advocate
for other treatment options and more therapy.
Although Jude's future is uncertain, his story
is one of love and hope. He has overcome many obstacles. As
long as he is stable, I have time to dedicate to causes close
to my heart. And maybe kids like Jude, and those who are so
much worse, will see some type of medicine or cure in their
precious little lifetimes.
There are two amazing families living with mito
that have inspired me. One is a mito mom, and she and her
husband have 10 children, including other kids that they adopted.
Another is a mito family with 5 children. Neither family got
a diagnosis until the most affected children were born--the
last two. This is a very difficult disease to live with, and
it is hard to get a diagnosis. We found out when Jude was
17 months old and had pursued it since he was 2 months. Some
of the families we know had to wait through multiple children
and a decade. Please tell people about mitochondrial disease.
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